Impact – Rare Disease | Bob Clark Beyond

On the Pathway to RVCL Progress

by Bob Clark | July 14, 2023 | Impact, Impact - Highlight, Impact - Rare Disease

The Clayco Foundation is on the Pathway to Progress! Earlier this week, we welcomed Dr. Jonathan Miner, MD, Ph.D., to give insight into the latest developments in Retinal Vasculopathy with Cerebral Leukoencephalopathy (RVCL) research. Dr. Miner is considered one of...

Recognizing Rare Disease Day

by Bob Clark | February 28, 2023 | Impact, Impact - Highlight, Impact - Rare Disease

Every year on February 28th, individuals and institutions worldwide amplify their efforts to raise awareness for Rare Disease Day. 400 million people worldwide live with a rare disease, and far more are impacted daily by them. By some estimates, rare disease affects...

Penn Medicine’s RVCL Research Center

by Bob Clark | December 26, 2022 | Highlight, Impact, Impact - Highlight, Impact - Rare Disease

The Clayco Foundation is committed to supporting meaningful research to find treatments and a cure for Retinal vasculopathy with cerebral leukoencephalopathy (RVCL), a rare genetic disease. We have made great strides and progress over this past year. Illumination 2022...

Illumination 2022 – Circus of Light

by Bob Clark | November 04, 2022 | Impact, Impact - Highlight, Impact - Rare Disease

Illumination 2022 Circus of Light was an incredible record-breaking gala for The Clayco Foundation! Through ticket purchases, sponsorships, and the generosity of various donors, we raised a record-breaking $1.1 million to help support the search for a cure for the...

The Lesser-Known Reality of Rare Disease

by Bob Clark | February 28, 2021 | Impact, Impact - Rare Disease

Memorial at the Ellen S. Clark Hope Plaza, Washington University School of Medicine. The pandemic has demonstrated a lot of things about the medical community and the reality of disease in this day and age. For one thing, when something like COVID affects the entire...

Rare Disease

by Bob Clark | September 08, 2020 | Impact, Impact - Rare Disease

Rare disease, and in particular cerebroretinal vasculopathy (CRV), is acutely personal for my family, having lost two beloved family members to this devastating illness. The first member of the family to succumb to CRV was David Lending, Ellen’s father, who died at...